Research
My research falls broadly within the interdisciplinary fiedl of Health Informatics. I have built upon my education in information science and medical informatics to address information problems in a variety of healthcare contexts, including: primary care, clinical research informatics, health communication, and understanding consumers’ health information behaviors. While the research questions, theories, and approaches have varied across projects, a consistent focus on improving people’s lives through information has driven my program of research.
Research Projects
Last year, my colleagues, Dr. Rachel Richesson, Kate Fultz Hollis, and I were happy to publish a much revised 3rd edition of Clinical Research Informatics (Springer-Verlag) . This remains the first text on the topic, and includes chapters and essays from some of the top researchers in this domain. It has been a text in many CRI courses, and has enjoyed tens of thousands of chapter downloads.
The ABOUT project, led by Dr. Rebecca Sutphen, from the Pedicatrics Epidemiology Center at USF Health, was completed several years ago and followed up the ABOARD . For both we conducted analyses on particularly rich sets of data. The ABOUT study was focused on baseline assessment of utilization and disparities in informational and healthcare services at the time of BRCA testing in the community setting. It was based on an extensive research collaboration and an innovative partnership with the nation’s third-largest health insurer, Aetna Ins. ABOUT was the first study to invite people from across the country to share their experience with BRCA testing.
Dr. Sutphen and team were subsequently awarded a large NIH grant to expand the ABOUT studa and focus on newly diagnosed breast cancer patients undergoing BRCA testing. Some select articles from these studies include:
Amstrong J, Lynch K, Virgo KS, Schwartz MD, Friedman S, Dean M, Andrews JE,
Bourquardez-Clark B, Clasen J, Conaty J, Parrillo O, Sutphen,R. Utilization, timing, and outcomes of BRCA genetic testing among women with newly diagnosed breast cancer from a national commercially insured population: The ABOARD study. JCO Oncology Practice. 2021; 172: e226-e235.Armstrong J, Toscano M, Kotchko N, Friedman S, Schwartz MD, Virgo KS, Lynch K, Andrews JE, Aguado Loi CX, Bauer JE, Casares, C, Teten RT, Kondoff MR, Molina AD, Abdollahian M, Walker GS, Sutphen R. Utilization and outcomes of BRCA genetic testing and counseling in a national commercially insured population: The ABOUT study. JAMA Onc. 2015 Oct 1;1(9): 12511260.
Armstrong J, Toscano M, Kotchko N, Friedman S, Schwartz MD, Virgo KS, Lynch K, Andrews JE, Aguado Loi CX, Bauer JE, Casares, C, Teten RT, Kondoff MR, Molina AD, Abdollahian M, Brand L, Walker GS, Sutphen R. American BRCA outcomes and utilization of testing – methodology model for personalized medicine/ patient-centered outcomes research in the real world. J of Gen Counsel. 2014 Sept 12; 24: 18-28. https://doi.org/10.1007/s10897-014-9750-3
PRISM completed...
Several researchers, including Dr. Richesson, Denise Shereff, and collaborators from the College of American Pathologists, SNOMED Terminology Solutions, completed our NIH-funded project: RD_PRISM (Patient Registry Item Specification and Metadata). More information about this project can be found at rdprism.org
Richesson RL, Shereff D, Andrews JE. Standardization of Questions in Rare Disease Registries: The PRISM Library Project. Interact J Med Res. 2012 Oct 10;1(2):e10. doi: 10.2196/ijmr.2107. PMID: 23611924; PMCID: PMC3626121.
Richesson R, Shereff D, Spisala C, Albarracin N, Konicek, Andrews JE. The use of SNOMED CT to support retrieval and re-use of question and answer sets for patient registries. Int J Functional Informatics and PersMed. Special Issue: “The Informatics of Metadata, Questions and Value Sets,” 2010;3(4), 342-365.
Richesson R, Shereff D, Andrews JE. [RD] PRISM Library: Patient Registry Item Specifications and Metadata for Rare Diseases. J Libr Metadata. 2010 Apr 1;10(2-3):119-135.
Andrews JE, Shereff D, Patrick TB, Richesson RL. The question about questions: Is DC a good choice to address the challenges of representation of clinical research questions and value sets? In D. Hillmann & M. Lauruhn editors, Proceedings of the 2010 Int’l Conf. on Dublin Core and Metadata Applications 2010 (pp. 88-93). Dublin Core Metadata Initiative.
Other Selected Research Projects
Andrews JE, Eldredge C. Applequist, J, Johnson JD. Evolving roles for patients in clinical research: Opportunities and Challenges. In: Richesson RL Andrews JE, Fultz-Hollis, K, editors. Clinical research informatics. 3rd ed. London: Springer; In press, release June 2023.
Yoon, J, Andrews, JE. (Under Review). Characteristics of Cancer Information Non-Seekers among Cancer Survivors. Submitted to Patient Educ Counseling.
Andrews JE, Applequist J, Ward HL, Fuzzell LN, Vadaparampil ST. Cancer-related information behavior among Black and Hispanics in an NCI-designated comprehensive cancer center catchment. Patient Educ Counseling. 26 May 2023. https://doi.org/10.1016/j.pec.2023.107812
Yoon J, Andrews JE, Ward HL. Perceptions on adopting AI into libraries: public and academic librarians. Library Hi Tech. 30 November, 2021. DOI https://doi.org/10.1108/LHT-07-2021-0229
Andrews JE, Yoon J, Ward H. UTAUT as a model for understanding intention to adopt AI and related technologies among librarians. J of Acad Libr. 2021; 47(6). https://doi.org/10.1016/j.acalib.2021.102437
Andrews JE, Fultz Hollis K, Payne P, Richesson R. Clinical research informatics books and book chapters: “How-to” lessons from authors and editors. Webinar panelist, AMIA Clinical Research Informatics Working Group, September 26, 2023 via AMIA website.
Andrews JE, Applequist J, Ward HL, Eldredge C. i-GENIS: a proposed framework for developing individualized genetic information seeking skills interventions. Poster presented at the 2022 AMIA Annual Symposium, Washington D.C., Nov. 5-9.
[See my Selected Works or CV for other works.]